Patient Video - Barry’s story: How did you find out you had MDS-related Anemia?

Barry describes how he found out he had MDS-related anemia. He was due to have surgery to remove a bone spur from his foot, and during a pre-operation blood test it was discovered that he had anemia due to an extremely low hemoglobin count. Subsequently, he had a bone marrow test done and a week later he was diagnosed with MDS with chromosome deletion 5q.

In kind memory of the passing of Barry Jacobs who wanted to share his experiences with others suffering from MDS.

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Other Modules:

Understanding Myelodysplastic Syndromes

Understanding Erythropoiesis

Diagnosis of MDS

Understanding Genetic Mutations in MDS

Management and Treatment of MDS

Managing and Treating MDS-related Anemia

Mutation-Driven Therapy in MDS

Blood and Marrow Transplantation in MDS

Understanding Clinical Trials in MDS

Including Everyone in Clinical Trials for MDS