Patient Video - Barry’s story: What has been the greatest success and greatest challenge with your MDS-related Anemia treatment?
Barry talks about the successes and challenges he has experienced with the various treatments he has been on for this MDS, including lenalidomide, azacitidine, and blood transfusions. He also talks about navigating the costs of treatment, which for some people can be quite financially burdensome.
In kind memory of the passing of Barry Jacobs who wanted to share his experiences with others suffering from MDS.
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Other Modules:
Animation - Managing and Treating MDS-related Anemia
Slide Show - Managing and Treating MDS-related Anemia
1.
What are the treatment options for MDS-related anemia?
2.
What are the goals of treatment for MDS-related anemia?
3.
How is higher-risk MDS-related anemia treated?
4.
What is “refractory anemia” and “primary anemia”? Are these terms still in use?
5.
When do people with MDS-related anemia need blood transfusions?
6.
How often could I need a blood transfusion for MDS-related anemia?
7.
Are blood transfusions safe? Are there risks?
8.
What is iron overload, and how it is treated?
9.
Can my bone marrow return to normal and produce its own red blood cells?
10.
What new treatments are in development for MDS-related anemia?
11.
Are there clinical trials for MDS-related anemia? What does the future hold?
12.
What treatment questions should I ask my doctor about my MDS?
13.
When is a blood and marrow transplant (stem cell transplant) used for MDS-related anemia?
14.
Abby’s story: What has been the biggest challenge with your MDS-related anemia?
15.
Barry’s story: What has been the biggest challenge with your MDS-related anemia?
16.
Bill’s story: What has been the biggest challenge with your MDS-related anemia?
17.
Abby’s story: What has been the greatest success and greatest challenge with your MDS-related Anemia treatment?
18.
Barry’s story: What has been the greatest success and greatest challenge with your MDS-related Anemia treatment?
19.
Bill’s story: What has been the greatest success and greatest challenge with your MDS-related Anemia treatment?
20.
Abby’s story: What advice do you have for other patients on their journey with MDS-related anemia?
21.
Barry’s story: What advice do you have for other patients on their journey with MDS-related anemia?
22.
Bill’s story: What advice do you have for other patients on their journey with MDS-related anemia?
