Patient Videos

Module: Understanding Myelodysplastic Syndromes

Patient Video - George's story: How did you find out you had MDS?
George describes the initial symptoms he experienced and the low counts of platelets, red cells and white cells he had leading up to his diagnosis of myelodysplastic syndromes (MDS).
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Patient Video - George's story: What has been the biggest challenge for you with your MDS?
George describes the biggest challenge he has faced with his MDS, which is the pain and discomfort he experiences after bone marrow tests.
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Patient Video - George's story: What has been the biggest surprise for you with your MDS?
George describes the biggest surprises he has had with his MDS. He has been able to maintain a full quality of life and hasn’t been as sick as he could have been. He also talks about the tremendous support he has received from the MDS Foundation.
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Patient Video - George's story: What advice do you have for other patients on their journey with MDS?
George shares practical advice for other people on their journey with myelodysplastic syndromes (MDS). He recommends staying as healthy as possible by maintaining healthy habits and staying away from germs.
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Patient Video - David's story: What advice do you have for other patients on their journey with MDS?
David shares his experiences and advice for patient’s who are struggling with a diagnosis of myelodysplastic syndromes (MDS). He says it is very important to ask questions, understand, be prepared, and stay positive. He also recommends reaching out to mentors for support and advice.
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Module: Diagnosis of MDS

Patient Video - George's story: How was your MDS diagnosed?
George describes the process and tests he went through when he was diagnosed with myelodysplastic syndromes (MDS). He also talks about what his doctors told him and how he felt when he learned of his diagnosis.
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Module: Management and Treatment of MDS

Patient Video - David's story: How was your MDS initially treated?
David talks about the initial types of treatment he was given for his MDS, before he had his blood and marrow transplant (BMT).
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Module: Blood and Marrow Transplantation in MDS

Patient Video - David's story: How did you find out you had MDS and needed a blood and marrow transplant?
David describes the tests he underwent for the diagnosis of his MDS, as well as the experiences he had leading to his blood and marrow transplant (BMT).
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Patient Video - David's story: What was your experience with blood and marrow transplantation?
David shares his experiences with blood and marrow transplant (BMT). He talks about what he went through during and after the BMT, and shares advice for others.
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This educational activity has been developed by
the Myelodysplastic Syndromes Foundation, Inc and Mechanisms in Medicine Inc.

This activity is supported by charitable grants from Celgene Corporation, Jazz Pharmaceuticals, Novartis, and Takeda Oncology.

This website is part of the Animated Patient™ series developed by Mechanisms in Medicine Inc., to provide highly visual formats of learning for patients to improve their understanding, make informed decisions, and partner with their health care professionals for optimal outcomes.