What’s the prognosis for MDS-related anemia? How is prognosis determined?

MDS experts, Dr Rafael Bejar and Dr Casey O’Connell, provide an overview of how prognosis (outlook) is determined in MDS. Risk scores are used to predict outlook and decide on treatment options. Your doctor will calculate your risk score based on which blood counts are low, your number of blasts, and any gene changes they see. They also describe the International Prognostic Scoring System (IPSS) and the Revised International Prognostic Scoring System (IPSS-R) tools that categorize risk, ranging from very low risk to very high risk. Lastly, the experts explain the various meanings of the term “risk” as it relates to MDS: risk of the MDS developing into acute myeloid leukemia (AML), as well as risk of overall survival (life expectancy with MDS).

  • Share with family and friends:

Click here to take our Myelodysplastic Syndromes (MDS) SURVEY
Your feedback is important to us! We will use your feedback to develop future areas of content about MDS which will help other patients, caregivers and families.

Please rate this content:
Animation - Understanding MDS-related Anemia
1. Animation - Understanding MDS-related Anemia
Slide Show - Understanding MDS-related Anemia
2. Slide Show - Understanding MDS-related Anemia

Expert Videos

What is MDS-related anemia? What causes it?
3. What is MDS-related anemia? What causes it?
What is a complete blood count? How does it show if I have anemia?
4. What is a complete blood count? How does it show if I have anemia?
What are the symptoms of MDS-related anemia?
5. What are the symptoms of MDS-related anemia?
What makes people with MDS more likely to have anemia?
6. What makes people with MDS more likely to have anemia?
What happens in MDS-related anemia over time?
7. What happens in MDS-related anemia over time?
What’s the prognosis for MDS-related anemia? How is prognosis determined?
8. What’s the prognosis for MDS-related anemia? How is prognosis determined?
Which questions should I ask my doctor about my MDS-related anemia?
9. Which questions should I ask my doctor about my MDS-related anemia?
How is MDS-related anemia diagnosed?
10. How is MDS-related anemia diagnosed?
How is MDS-related anemia screened and monitored?
11. How is MDS-related anemia screened and monitored?
Which other conditions have symptoms similar to MDS-related anemia?
12. Which other conditions have symptoms similar to MDS-related anemia?
If I have MDS-related anemia, what should I watch out for in daily life?
13. If I have MDS-related anemia, what should I watch out for in daily life?
Which specific diagnosis questions should I ask my doctor about my MDS?
14. Which specific diagnosis questions should I ask my doctor about my MDS?
How does acute myeloid leukemia (AML) relate to MDS?
15. How does acute myeloid leukemia (AML) relate to MDS?
Why is it important to understand the causes of unexplained anemia?
16. Why is it important to understand the causes of unexplained anemia?

Patient Videos

Abby’s story: How did you find out you had MDS-related Anemia?
17. Abby’s story: How did you find out you had MDS-related Anemia?
Barry’s story: How did you find out you had MDS-related Anemia?
18. Barry’s story: How did you find out you had MDS-related Anemia?
Bill’s story: How did you find out you had MDS-related Anemia?
19. Bill’s story: How did you find out you had MDS-related Anemia?
Abby’s story: How was your MDS-related Anemia diagnosed?
20. Abby’s story: How was your MDS-related Anemia diagnosed?
Barry’s story: How was your MDS-related Anemia diagnosed?
21. Barry’s story: How was your MDS-related Anemia diagnosed?
Bill’s story: How was your MDS-related Anemia diagnosed?
22. Bill’s story: How was your MDS-related Anemia diagnosed?

This educational activity has been developed by
the Myelodysplastic Syndromes Foundation, Inc and Mechanisms in Medicine Inc.

This activity is supported by an educational grant from Acceleron Pharma, Celgene Corporation, Jazz Pharmaceuticals, Novartis, and Takeda Oncology.

This website is part of the Animated Patient™ series developed by Mechanisms in Medicine Inc., to provide highly visual formats of learning for patients to improve their understanding, make informed decisions, and partner with their healthcare professionals for optimal outcomes.